| The Diving Bell and the Butterfly | |
|---|---|
| Author(s) | Jean-Dominique Bauby |
| Country | France |
| Language | French |
| Genre(s) | Autobiography, Memoir |
| Publisher | Éditions Robert Laffont |
| Publication date | March 6, 1997 |
| Pages | 139 |
| ISBN | 978-0375401152 |
The Diving Bell and the Butterfly is a translation of the French memoir Le scaphandre et le papillon by journalist Jean-Dominique Bauby. It describes what his life is like after suffering a massive stroke that left him with a condition called locked-in syndrome. It also details what his life was like before the stroke.
On December 8, 1995, Bauby, the editor-in-chief of Elle magazine, suffered a stroke and lapsed into a coma. He awoke 20 days later, mentally aware of his surroundings but physically paralyzed with the exception of some movement in his head and eyes (one of which had to be sewn up due to an irrigation problem). The entire book was written by Bauby blinking his left eyelid, which took ten months (four hours a day). Using partner assisted scanning, a transcriber repeatedly recited a French language frequency-ordered alphabet (E, S, A, R, I, N, T, U, L, etc.), until Bauby blinked to choose the next letter. The book took about 200,000 blinks to write and an average word took approximately two minutes. The book also chronicles everyday events for a person with locked-in syndrome. These events include playing at the beach with his family, getting a bath, and meeting visitors whilst in hospital at Berck-sur-Mer.
The French edition of the book was published on March 6, 1997. It received excellent reviews, sold the first 25,000 copies on the day of publication, reaching 150,000 in a week. It went on to become a number one bestseller across Europe. Its total sales are now in the millions. On 9 March 1997, three days after the book was published, Bauby died of pneumonia.[1][2]
In 2007 the book was adapted into a feature film of the same name, directed by Julian Schnabel, written by Ronald Harwood and starring Mathieu Amalric as Bauby. Julian Schnabel won best director that year at the Cannes Film Festival.[3] The film was nominated for four Academy Awards in 2008 for directing, cinematography, editing and writing.[4] It would go on to win numerous international awards, including a BAFTA for adapted screenplay, and Golden Globes for best foreign language film and best director.[5][6]
While Bauby was still alive, French director Jean-Jacques Beineix made a 25-minute film, "Assigné à résidence" (or "House Arrest"), that captured Bauby in his paralysed state, and the process of the book's composition.[7]
Reviews of The Diving Bell and the Butterfly: